A new study from Cleveland Clinic researchers evaluated the perceived health-related quality-of-life benefits of CI among normally-developing children and NCNIDD children.
Incidence Estimates Generated for Over 100 Rare Monogenic Neurodevelopmental Disorders
A study combining genetic data and statistical modeling has generated some of the first epidemiologic estimates for neurodevelopment disorders caused by de novo variants. It promises much-needed guidance on priorities around these rare diseases.
Neurodevelopmental Issues in Congenital Heart Disease: The Case for Multidisciplinary Care
High rates of neurodevelopmental disability are the one downside of improved survival among kids with congenital heart disease. Here’s why Cleveland Clinic created a Neurocardiac Clinic for these patients’ unique needs.
Complex CDKL5-Related Disease Cases Require Coordinated Care
Considering the variety and complexity of symptoms involved in the pediatric neurodevelopmental disorder known as CDKL5-related disease, a multidisciplinary approach to medical care is important. Cleveland Clinic Children’s opened the country’s third CDKL5 center of excellence in 2014.
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